Our first tango in Paris
Your first caress
Your first kiss
Never say never
Good things do happen
One day there is nothing but death
Suddenly life sprouts up
One day it’s bleak
Suddenly I see the sun peak
One day it’s all cold endless nights
Suddenly the nights grow shorter
One day muffled cries into my pillow
Suddenly I laugh tossing my head back
One day I die
From lie after lie
Suddenly love knocks on my door
And my feet hit the floor
I can’t wait to see what’s in store
In a not too distant shore
Un dia un suspiro, One day I sigh
De pronto un escalofrio, Suddenly shivers up and down my spine
Un dia bebo vino sola, One day alone, I drink red wine
Depronto tengo quien llene mi copa , Suddenly you fill my glass
One day I belong to no one
Suddenly you showed up!
EVA SANTIAGO copyright 2012
During these 7 years I have learned to manage living with kidney failure. I’ve lost count of all the tests , x-rays, biopsies,cat-scans, blood transfusions I have had to under go. I can’t remember the last time I ever felt healthy; was I ever healthy before this?
There was a time before the doctors diagnosed me with kidney failure , where I had to be isolated for 3 days. I was somewhere between 8 or 9 years old. They used radiation in order to turn out my thyroid. To be honest I really don’t quite understand what any of it meant, all I know is I went through that and I knew even back then that God was with me.
I can remember once I was hospitalized and my dad was sitting with me playing chess. The nurses were changing their shifts and my dad had to leave; but before he did, he went to use the restroom. I climbed out of my bed and instantly my head felt like a balloon about to float away. I walked toward my dad and in a weak voice I told him I was light headed. He had great timing because he quickly spun around and caught me on my way down before I had the chance to bang my head on the toilet.
I had never seen my dad so scared; he’s a man that can take just about anything too. As I lay on the cold tile flooring I could hear him yelling at the nurses; it all sounded muffled and far away ;which is where I wished I could be; far away from this whole situation.Finally a nurse came and put me back in bed and then she realized I needed more blood so she ordered me a blood transfusion.
In 2010 I went through something that I never would have expected . I was home and I felt a new, strange pain in my chest. Thankfully my parents were close by and they rushed me into my dad’s white pick-up truck. As the minutes flew by I became numb; I felt rubbery from the top of my head to the tips of my toes. I tell ya Gumby had nothing on me! At the entrance to the hospital, I tried to step out of the truck and my legs felt like the tendrils of a jelly fish; they gave out too. My dad was right there and caught me just in time again.
My dad threw me over his left shoulder and he took off in a mad dash toward the ER. If it had been a football game, he would have made a touchdown! I could hear him bellowing at the top of his lungs for help. I could count at least 7 nurses rushing to my gurney; everyone was talking so fast it made my head spin. All their words rushed at me with such speed and intensity; I pictured my mind a highway running wild with bits and pieces of conversations and nothing made sense. After a little while though I was able to make out what was being said; because my potassium levels were sky high, I was in the early stages of a heart attack.
God’s grace and His favor saw me through what I now consider to be one of the scariest moments of my life. It sounds crazy; I’m a teen and I had just come very close to having had a heart attack. The next day it felt like God had given me a miracle, especially when I rose up out of my bed and I was walking around feeling way better than the day before. I still recall the amazed looks on those nurses; I think I was as surprised as they were.
In my next post I will tell you how JR has struggled with some other difficult issues that are all side effects of his condition.